A young girl suffers from a rare disorder that makes her vulnerable to death every time he falls asleep, which causes her parents an indescribable agony.
Every night, our mother tries to protect her daughter Paola Teixeira (3 years) when he sleeps. Paola, who lives with her family in Zamora, Spain, suffers from Ondine's syndrome, which affects about 1,000 to 1,200 people around the world. This condition causes breathing to stop at the moment of sleep, which puts Paula at risk of death
"Paula needs someone to watch her while she sleeps all her life, so we can not sleep like we did before," she said.
Although the poor girl is well placed to live at home and go to school, her condition requires an artificial respirator to provide oxygen to her every night while she sleeps.
"I can not ask myself why this happened to me, or why I have a girl suffering from this condition," said her father Roberto.
The artificial respirator, which provides Paula with oxygen through a tube attached to her neck, did not provide the peace of mind to Silvana, who is still worried, and asks herself, "What if the device breaks down?"
It should be noted that hours after the birth of Paola, she stopped breathing and was taken to hospital. Two months after the genetic tests, doctors were able to diagnose the condition of the disease with Ondine. The case is responsible for many deaths.
"Uniden syndrome is very rare, and the number of cases in the world is very low where diagnosis occurs late, and many sudden deaths in young children, newborns or infants may be related to the disease," said Dr. Elvira Gonzalez Salas, a pediatrician. Which has never been diagnosed. "
images source:Discovery/Barcoft Productions