<?xml version="1.0" encoding="UTF-8"?><rss xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:atom="http://www.w3.org/2005/Atom" version="2.0"><channel><title><![CDATA[RSS Feed]]></title><description><![CDATA[RSS Feed]]></description><link>http://direct.ecency.com</link><image><url>http://direct.ecency.com/logo512.png</url><title>RSS Feed</title><link>http://direct.ecency.com</link></image><generator>RSS for Node</generator><lastBuildDate>Fri, 24 Apr 2026 01:12:04 GMT</lastBuildDate><atom:link href="http://direct.ecency.com/created/cdhsurvivor/rss.xml" rel="self" type="application/rss+xml"/><item><title><![CDATA[Youngest son's hospital day and we treat ourselves to dinner at restaurant❣️]]></title><description><![CDATA[It was a hospital day yesterday for my youngest son, our CDH survivor, this time at the respiratory department. Doctor said that his spine started to curve towards the right side considering his right]]></description><link>http://direct.ecency.com/hive-178265/@iamjadeline/youngest-son-s-hospital-day</link><guid isPermaLink="true">http://direct.ecency.com/hive-178265/@iamjadeline/youngest-son-s-hospital-day</guid><category><![CDATA[hive-178265]]></category><dc:creator><![CDATA[iamjadeline]]></dc:creator><pubDate>Fri, 25 Oct 2024 04:18:18 GMT</pubDate><enclosure url="https://images.ecency.com/p/2FFvzA2zeqoVPgRCnRzbu6rj6tCWHWVCA9ZaKB4Zq3ygyouqn4pkew4A9Kb2FQShwK9x6RyoRjeomv4LjzQNp4KPkKMbNZMtxm6iWeyTLueBgy1QCGc8RVP9SrGMC?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Hospital Day: Lung Function Test & Early Lunch ]]></title><description><![CDATA[###It was another hospital appointment for Jansen. Screening Spirometry Test This time, it was for lung function test aka spirometer screening. This was his 3rd time doing it but he was still very nervous]]></description><link>http://direct.ecency.com/hive-147010/@iamjadeline/hospital-day-lung-function-test-early-lunch</link><guid isPermaLink="true">http://direct.ecency.com/hive-147010/@iamjadeline/hospital-day-lung-function-test-early-lunch</guid><category><![CDATA[hive-147010]]></category><dc:creator><![CDATA[iamjadeline]]></dc:creator><pubDate>Thu, 08 Dec 2022 14:59:24 GMT</pubDate><enclosure url="https://images.ecency.com/p/RtfsyWaiw3sL722wp4WJT9m1jxxdBXKqoP5PcH6oMBhGjuhRHspZTjnp7vFsF9qMq7AbH53jLq9Zzyoe8VKVYgGgPUvSrKkHTXhALGJ4uwq45sMCw61Z676zA1U8dLiC3HQVa1E5rSq83tZdQDpRHSXCvtxgefJA7AFk1zDHfzC7EPSSQg27FzngFwinvoApF2MGYctchUScDwGKdxWQA9uFvNhhhpNzCpyh9buoVY8xqaL6Z4rxVXUS9Ho4cf?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[The rays of sun]]></title><description><![CDATA[If you were ever being sick on a sick bed for months, you would really appreciate the rays of sun. You would let all the rays absorbed into every cells and sinews within. If can, no matter how warm it]]></description><link>http://direct.ecency.com/hive-161155/@iamjadeline/the-rays-of-sun</link><guid isPermaLink="true">http://direct.ecency.com/hive-161155/@iamjadeline/the-rays-of-sun</guid><category><![CDATA[hive-161155]]></category><dc:creator><![CDATA[iamjadeline]]></dc:creator><pubDate>Thu, 11 Feb 2021 07:45:36 GMT</pubDate><enclosure url="https://images.ecency.com/p/vM1pGHgNcyCbee5hzZJ19JZfuFzCeUv7mVFKdbzGpBbH7UmEMTCsh5xh8u2PpEALa7DwkZ41ac5iqomcNXLd7RBLDD1sPynubSGyzqaJqT2QZjWjvekzcb3kzzCcudGsf5d2y1Y?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Hand-eye-coordination / Patience / perler beads activity]]></title><description><![CDATA[Last week and this week is my eldest school's assessment week, so I am like all-over-the-place helping him in his revision due to challenge in language. I was major in Malay language during my school time,]]></description><link>http://direct.ecency.com/hive-199420/@iamjadeline/hand-eye-coordination-patience-perler-beads-activity</link><guid isPermaLink="true">http://direct.ecency.com/hive-199420/@iamjadeline/hand-eye-coordination-patience-perler-beads-activity</guid><category><![CDATA[hive-199420]]></category><dc:creator><![CDATA[iamjadeline]]></dc:creator><pubDate>Tue, 01 Dec 2020 13:00:21 GMT</pubDate><enclosure url="https://images.ecency.com/p/54TLbcUcnRm4Bw8fmw3Y3deXChf9UQSDSsMgDEZRowPVtk98L1cNgUnea145ZUzgq4Z9vryLsoeDKxJ2ZGtQkTGQU3YbiGnwh5BnKo4su9VztX1bsjUkhVz9RzdasXS4ZgzDWPH3t?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Random Musing / life with CDH boy]]></title><description><![CDATA[Yet again, another CDH baby gained his wings. We sobbed, we sent love to the parents and families. We were heartbroken. The baby fought so hard but while he was on ECMO, his brain bleed. 😭 Then, all started]]></description><link>http://direct.ecency.com/hive-148441/@iamjadeline/random-musing-life-with-cdh-boy</link><guid isPermaLink="true">http://direct.ecency.com/hive-148441/@iamjadeline/random-musing-life-with-cdh-boy</guid><category><![CDATA[hive-148441]]></category><dc:creator><![CDATA[iamjadeline]]></dc:creator><pubDate>Tue, 22 Sep 2020 14:01:21 GMT</pubDate><enclosure url="https://images.ecency.com/p/54TLbcUcnRm4Bw8fmw3Y3deXChf9UQSDSsMgDEZRoy4qYJeaTAm39wcqPuH7ykpoYDp4DWGArkxoXDVq6oQ8qtkuuKxrxu8b1a27WaVbe5dCwHtQhrRb9CXCRcpAmwa4wWUP4oJjY?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA['Picnic' at hospital / routine follow-up]]></title><description><![CDATA[It had been one year since we saw our our surgeon, to be precise, Jansen's surgeon, Prof Yik. There was no photo of him because hospital here did not encourage taking photos while the doctors and nurses]]></description><link>http://direct.ecency.com/hive-114105/@iamjadeline/picnic-at-hospital-routine-follow-up</link><guid isPermaLink="true">http://direct.ecency.com/hive-114105/@iamjadeline/picnic-at-hospital-routine-follow-up</guid><category><![CDATA[hive-114105]]></category><dc:creator><![CDATA[iamjadeline]]></dc:creator><pubDate>Thu, 20 Aug 2020 06:01:51 GMT</pubDate><enclosure url="https://images.ecency.com/p/54TLbcUcnRm4Bw8fmw3Y3deXChf9UQSDSsMgDEZRqK9kvH6nM8QvCW7fd45TqarMzr7gFy1p54J5NPS22ZtV6XWPXjKVfUpQj8AdNx9ehE17qfVNYU8sZEKvvm2dorfqrxU8nKfbU?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Castor Oil / Freewrite's Prompt by @MarianneEWest]]></title><description><![CDATA[People say good thing takes time. Be it wine. Or extraction of oil. Like oil painting. Like baby in the womb. Or even a person going through a challenge. Photo is taken from unsplash.com, captured by Jonathan]]></description><link>http://direct.ecency.com/hive-161155/@iamjadeline/castor-oil-freewrite-s-prompt-by-marianneewest</link><guid isPermaLink="true">http://direct.ecency.com/hive-161155/@iamjadeline/castor-oil-freewrite-s-prompt-by-marianneewest</guid><category><![CDATA[hive-161155]]></category><dc:creator><![CDATA[iamjadeline]]></dc:creator><pubDate>Wed, 22 Jul 2020 16:26:33 GMT</pubDate><enclosure url="https://images.ecency.com/p/gPCasciUWmEzNYtqbGEDRoyYeseHMDTak3FVSeMfNcRhW1eG6yH2JdbJV67DaB3jkxJPmEgiib9U9iUbPkQdHq5Eh18tkox8MU61CPzjktDLxVovZXj8a34Lpn85CnAEefzpLh4Ux7GZh4bt22?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[The Shortest Hospital Appointment Ever😍]]></title><description><![CDATA[We were thrilled for today's hospital visit for Jansen's regular respiratory follow up because instead of the usual 5-hour wait, today we waited only 1 hour. This helped to minimise some concerns in me]]></description><link>http://direct.ecency.com/hive-114105/@iamjadeline/the-shortest-hospital-appointment-ever</link><guid isPermaLink="true">http://direct.ecency.com/hive-114105/@iamjadeline/the-shortest-hospital-appointment-ever</guid><category><![CDATA[hive-114105]]></category><dc:creator><![CDATA[iamjadeline]]></dc:creator><pubDate>Thu, 09 Jul 2020 15:43:03 GMT</pubDate><enclosure url="https://images.ecency.com/p/Y2iXpRRkNSnseh3NuL6KUBitJTXrc5K2kyLkWi4SQtY8n?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[And more presents for the CDH champ!🎉]]></title><description><![CDATA[Please bear with me if you notice I have this presents-gifts-thread of blogs here, because I made it a goal to journal down all the blessings aka present my son, Jansen, recently had from his recent 6th]]></description><link>http://direct.ecency.com/life/@iamjadeline/and-more-presents-for-the-cdh-champ</link><guid isPermaLink="true">http://direct.ecency.com/life/@iamjadeline/and-more-presents-for-the-cdh-champ</guid><category><![CDATA[life]]></category><dc:creator><![CDATA[iamjadeline]]></dc:creator><pubDate>Tue, 07 Jul 2020 14:49:18 GMT</pubDate><enclosure url="https://images.ecency.com/p/Y2iXpRRkNSnseh3NuL6KUBitJTXrc5K2vpcCyf5qDcqie?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Fruitssss again from Aunty M]]></title><description><![CDATA[I am continuing the journal of Jansen's presents, because I think it is worth to be kept here in the blockchain. Forgive me if I bored you with all these presents' posting. One of my best friends (also]]></description><link>http://direct.ecency.com/love/@iamjadeline/fruitssss-again-from-aunty-m</link><guid isPermaLink="true">http://direct.ecency.com/love/@iamjadeline/fruitssss-again-from-aunty-m</guid><category><![CDATA[love]]></category><dc:creator><![CDATA[iamjadeline]]></dc:creator><pubDate>Sat, 04 Jul 2020 10:10:24 GMT</pubDate><enclosure url="https://images.ecency.com/p/Y2iXpRRkNSnseh3NuL6KUBitJTXrc5JymVYi8rok6BY6i?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[New age / Freewrite's Prompt by @MarianneEWest]]></title><description><![CDATA[Not sure whether is this applicable here but I certainly know it will be approved as freewrite by Marianne as anything goes. Instead of writing about New Age, I want to type on my son's new age 😎. Because...]]></description><link>http://direct.ecency.com/hive-161155/@iamjadeline/new-age-freewrite-s-prompt-by-marianneewest</link><guid isPermaLink="true">http://direct.ecency.com/hive-161155/@iamjadeline/new-age-freewrite-s-prompt-by-marianneewest</guid><category><![CDATA[hive-161155]]></category><dc:creator><![CDATA[iamjadeline]]></dc:creator><pubDate>Fri, 03 Jul 2020 13:26:30 GMT</pubDate><enclosure url="https://images.ecency.com/p/cyxkEVqiiLy5czPNg6acYev351Du9gQgrBvuGcjzjMFBE94SZYWTZLsEuL59Djyx2Rp7zq1G2XwwnE9tCwBRzrUCygn6Zf724YHt8zMAMBen1vL5aVtL6BB8jR4mb2TvrGN?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Happy birthday / Part 2 / 🟥🟧🟨🟩🟦🟪🟫]]></title><description><![CDATA[We are thankful It is Jansen's 6th birthday and I could never be thankful enough for his life. I could say it or type it over and over again, hopefully no one was bored reading it. Born with eadly congenital]]></description><link>http://direct.ecency.com/hive-148441/@iamjadeline/happy-birthday-part-2</link><guid isPermaLink="true">http://direct.ecency.com/hive-148441/@iamjadeline/happy-birthday-part-2</guid><category><![CDATA[hive-148441]]></category><dc:creator><![CDATA[iamjadeline]]></dc:creator><pubDate>Fri, 03 Jul 2020 10:25:24 GMT</pubDate><enclosure url="https://images.ecency.com/p/cyxkEVqiiLy5czPNg6acYev351Du9gQgrBvuGcnkSZtYzgB6QveK69mQVKgL1F6s4pVo5qfxkeA6i58xFnaK6UHCLk9Ckmhhdjfe3PtL5iB8aQMQggXLoeeCVe2jM27BN9L?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Fiber / Freewrite's Prompt by @MarianneEWest ]]></title><description><![CDATA[First thing first, do we spell as fiber or fibre? We have been dealing with fibre intake for Jansen for years now, and had come to term that it has nothing to do with his fiber intake, but more towards]]></description><link>http://direct.ecency.com/hive-161155/@iamjadeline/fiber-freewrite-s-prompt-by-marianneewest</link><guid isPermaLink="true">http://direct.ecency.com/hive-161155/@iamjadeline/fiber-freewrite-s-prompt-by-marianneewest</guid><category><![CDATA[hive-161155]]></category><dc:creator><![CDATA[iamjadeline]]></dc:creator><pubDate>Mon, 29 Jun 2020 01:46:06 GMT</pubDate><enclosure url="https://images.ecency.com/p/Y2iXpRRkNSnseh3NuL6KUBitJTXrc5JytsjsrZyUgPpY6?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Early Gift / Freewrite's Prompt by @MarianneEWest ]]></title><description><![CDATA[We love to celebrate life the life of a champion! Even more so on a life whom was once said to have no chance. Then, he was given 50-50 chance. And then, he is still with us today. Our CDH Survivor Warrior.]]></description><link>http://direct.ecency.com/hive-161155/@iamjadeline/early-gift-freewrite-s-prompt-by-marianneewest</link><guid isPermaLink="true">http://direct.ecency.com/hive-161155/@iamjadeline/early-gift-freewrite-s-prompt-by-marianneewest</guid><category><![CDATA[hive-161155]]></category><dc:creator><![CDATA[iamjadeline]]></dc:creator><pubDate>Fri, 26 Jun 2020 09:59:06 GMT</pubDate><enclosure url="https://images.ecency.com/p/Y2iXpRRkNSnseh3NuL6KUBitJTXrc5JywwX1n6fD3bFoL?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Trust me, my friend ]]></title><description><![CDATA[Trust me, I am not kidding... Was my response to one to my friends during his visit to our place one fine day somewhere Christmas last year. He could not believe my son was 5 years old. He thought he was]]></description><link>http://direct.ecency.com/hive-161155/@iamjadeline/trust-me-my-friend</link><guid isPermaLink="true">http://direct.ecency.com/hive-161155/@iamjadeline/trust-me-my-friend</guid><category><![CDATA[hive-161155]]></category><dc:creator><![CDATA[iamjadeline]]></dc:creator><pubDate>Sun, 07 Jun 2020 17:43:45 GMT</pubDate><enclosure url="https://images.ecency.com/p/Y2iXpRRkNSnseh3NuL6KUBitJTXrc5K3bhzXRHzn9j7zv?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Precious Quality Time]]></title><description><![CDATA[Past few days wasn't an easy one for me (us) at home. My youngest had his bouts of internal pain again (not going to elaborate anymore but yeah, it was post-surgery complications which would be there unless]]></description><link>http://direct.ecency.com/hive-114105/@iamjadeline/precious-quality-time</link><guid isPermaLink="true">http://direct.ecency.com/hive-114105/@iamjadeline/precious-quality-time</guid><category><![CDATA[hive-114105]]></category><dc:creator><![CDATA[iamjadeline]]></dc:creator><pubDate>Sat, 23 May 2020 10:19:21 GMT</pubDate><enclosure url="https://images.ecency.com/p/Y2iXpRRkNSnseh3NuL6KUBitJTXrc5JyzZm9nSTv2o2Dk?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Quick Update / Supposed to cut down gadget usage today ]]></title><description><![CDATA[Hi dear Hivers, How is everyone? We know people are staying home, finding the new norm, adapting to the new lifestyle while the earth is healing. Somehow, we have to stay positive as much as we can, find]]></description><link>http://direct.ecency.com/hive-114105/@iamjadeline/quick-update-supposed-to-cut-down-gadget-usage-today</link><guid isPermaLink="true">http://direct.ecency.com/hive-114105/@iamjadeline/quick-update-supposed-to-cut-down-gadget-usage-today</guid><category><![CDATA[hive-114105]]></category><dc:creator><![CDATA[iamjadeline]]></dc:creator><pubDate>Sun, 10 May 2020 15:46:54 GMT</pubDate><enclosure url="https://images.ecency.com/p/Y2iXpRRkNSnseh3NuL6KUBitJTXrc5K3GPKfMzXNqYWQe?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Keep Trying, My CDH Gem! // Homeschooling]]></title><description><![CDATA[This was yesterday's homeschooling activities but I didn't get to post as I was abit mentally emotionally drained after helping my youngest with his writing specifically in numbers. We noticed sometime]]></description><link>http://direct.ecency.com/hive-148441/@iamjadeline/keep-trying-my-cdh-gem-homeschooling</link><guid isPermaLink="true">http://direct.ecency.com/hive-148441/@iamjadeline/keep-trying-my-cdh-gem-homeschooling</guid><category><![CDATA[hive-148441]]></category><dc:creator><![CDATA[iamjadeline]]></dc:creator><pubDate>Wed, 06 May 2020 10:35:36 GMT</pubDate><enclosure url="https://images.ecency.com/p/cyxkEVqiiLy5czPNg6acYev351Du9gQgrBvuGckGvMFF1iVQ6T3gEEkwfyn7CXaT8ibYeQvo2DpmJAZzHpno8vwumbyqUgAnsUTvMPp9LYi7DLXW3z28heAfZovCYBjmNo8?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[He has one of his dreams fulfilled. Often, he saw on video other children jumping ...]]></title><description><![CDATA[... happily on trampoline and he did mention once "how nice if we have one at home, then I can jump whole day". And he got to do it during his Occupational Therapy session at hospital the other]]></description><link>http://direct.ecency.com/appics/@iamjadeline/appics-im-14845</link><guid isPermaLink="true">http://direct.ecency.com/appics/@iamjadeline/appics-im-14845</guid><category><![CDATA[appics]]></category><dc:creator><![CDATA[iamjadeline]]></dc:creator><pubDate>Sun, 17 Mar 2019 00:31:42 GMT</pubDate><enclosure url="https://images.ecency.com/p/gPCasciUWmF5N2FrihD88x2m8jszo46HUjdYYmjFNjsfGHBLCGTA5JY3Z78pHpSZVai9M8tafA7NMuCJmpjy3ETbeS8YkP481csv47usPcp8q3q94Bt4V34nWAKwoA7GbwEokkrR5Csfg2WHav?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[It had been a longggggg day at the hospital. Usually the waiting time is wayyyy longer ...]]></title><description><![CDATA[... than the consulting time. According to Professor, Jansen seems to be improving from his previous state. And we are hoping as he grows older, more complication will subside. Met with dietician too since]]></description><link>http://direct.ecency.com/appics/@iamjadeline/appics-im-14442</link><guid isPermaLink="true">http://direct.ecency.com/appics/@iamjadeline/appics-im-14442</guid><category><![CDATA[appics]]></category><dc:creator><![CDATA[iamjadeline]]></dc:creator><pubDate>Wed, 13 Mar 2019 11:12:06 GMT</pubDate><enclosure url="https://images.ecency.com/p/gPCasciUWmF5N2FrihD88x2m8jszo46HUjdYYmjFNjsfGHBLCGTA5JY3Z78pHpSZVai9M8tafA7NMuCJmpjy3ETbfCeVVkMf9AznyYfK8ipTAtuMEADtBu5VigE3UXrTwGL2f7iFR5GPZ4Cq8i?format=match&amp;mode=fit" length="0" type="false"/></item></channel></rss>