<?xml version="1.0" encoding="UTF-8"?><rss xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:atom="http://www.w3.org/2005/Atom" version="2.0"><channel><title><![CDATA[RSS Feed]]></title><description><![CDATA[RSS Feed]]></description><link>http://direct.ecency.com</link><image><url>http://direct.ecency.com/logo512.png</url><title>RSS Feed</title><link>http://direct.ecency.com</link></image><generator>RSS for Node</generator><lastBuildDate>Wed, 22 Apr 2026 01:13:22 GMT</lastBuildDate><atom:link href="http://direct.ecency.com/created/duchenneawareness/rss.xml" rel="self" type="application/rss+xml"/><item><title><![CDATA[Accessible Playground Review Number 2 - We Were Duped]]></title><description><![CDATA[This is our second accessible playground review and we kind of had high hopes for it. We'd been told that the recently renovated playground had been given accesible features. We had high hopes! ▶️ 3Speak]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/fxtgjmck</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/fxtgjmck</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Fri, 07 Feb 2025 13:24:06 GMT</pubDate><enclosure url="https://images.ecency.com/p/99pyU5Ga1kwr5bsMXthzYLbcngN4W2P8NtU9TWTdHC3HaQbjuuRfKKVdjVdAopbdPDpQztTdT4xGuiLydG5xyxQPCyGNojbRofYaRze3439CNPjzp4uHPQuufjCjJ155wc?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Playground Review - Inclusive or Not? Review 1]]></title><description><![CDATA[If you've followed my account at all, you'll know that I'm all about helping people to understand Duchenne muscular dystrophy, a rare genetic condition that my son has. This year (and well into the future),]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/mbyrfkne</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/mbyrfkne</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Mon, 27 Jan 2025 09:01:03 GMT</pubDate><enclosure url="https://images.ecency.com/p/99pyU5Ga1kwr5bsMXthzYLbcngN4W2P8NtU9TWTdHC3HaQbjuuRfKKVdjViV1edaaxWmiZ99BMMrNPgkedsWTWvwxaLG6saUhAQf3SHFtmcWxtDLDzx6ngBDhFcEDcJfSN?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[2025 Goals - Review Playgrounds for Accessibility]]></title><description><![CDATA[My son was diagnosed with Duchenne muscular dystrophy nearly 3 years ago and in recent times, I've begun to notice that most public playgrounds are highly inaccessible for people who use mobility aids.]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/jojlzdsd</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/jojlzdsd</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Fri, 24 Jan 2025 10:07:06 GMT</pubDate><enclosure url="https://images.ecency.com/p/99pyU5Ga1kwr5bsMXthzYLbcngN4W2P8NtU9TWTdHC3HaQbjuuRfKKVdjVbFecYGjt49ed1ytFRmcC3HeGYL4hjMB27K1JDPxdpPWVNXyYgXgh3eebKfRibTwGfuDd5Ugn?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Awareness Raising Walk 2024]]></title><description><![CDATA[A little over a week ago I completed the awareness/fundraising walk that my previous couple of posts have been in reference to. The goal was to, primarily, raise awareness of Duchenne muscular dystrophy]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/awareness-raising-walk-2024</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/awareness-raising-walk-2024</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Tue, 01 Oct 2024 23:39:42 GMT</pubDate><enclosure url="https://images.ecency.com/p/k75bsZMwYNu2L3iBMXq5y7xeiy1isFJsZxnMZSXuXEsxe4ee1cUkGyPMVkWp5L5M5aLxuupYsC17XLCSsnhowepTTJoycwzynoyn4z51UFk7V6bXsN8P4UhpTFzMHETRAYHwLaysGrVY7tfyi5pgkxoD4Kn9QBk1U?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[You. Can’t. Stop.]]></title><description><![CDATA[It’s been some time since my last post where I outlined my plans to run an awareness raiser so that more people can learn about Duchenne muscular dystrophy (DMD). Since that post, I’ve been busy getting]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/you-cant-stop</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/you-cant-stop</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Thu, 11 Jul 2024 07:33:24 GMT</pubDate><enclosure url="https://images.ecency.com/p/FUkUE5bzkAZT3HzV5tJDiU2ik81PCd4JCyhWnRcDN8XJsVFY3UNB8DCScminp66Eq7Xxj9kHkSBzbJB8aMtL8KTbXQQSnie5vkbn9eCFP7EYQrpvbgj3mYTaqSkY2SS1CDEF4gtvyqfkW9gGCeEqW9d1zskK3nu831Dp?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Because I Can]]></title><description><![CDATA[🌟 Join Me in Making a Difference! 🌟 That’s right! You haven’t watched wrong! I’m going to be walking 79km on the 7th of September with the intention of raising awareness of Duchenne muscular dystrophy]]></description><link>http://direct.ecency.com/hive-150329/@d-a-d/ytbijkzh</link><guid isPermaLink="true">http://direct.ecency.com/hive-150329/@d-a-d/ytbijkzh</guid><category><![CDATA[hive-150329]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Fri, 07 Jun 2024 22:51:03 GMT</pubDate><enclosure url="https://images.ecency.com/p/99pyU5Ga1kwr5bsMXthzYLbcngN4W2P8NtU9TWTdHC3HaQbjuuRfKKVdjVeEUd8c8hx82NmfGp899Uwo4cN5os9DB1ZqzpLTqTuzb5aiVgYfosAu7AQVfZcQsUK7VjdccN?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Because I Can...]]></title><description><![CDATA[A couple of posts ago, I wrote about my son's recent school camp and how it was noticeably more difficult for him this year, than last year. As I concluded that post, I wrote the following final paragraph:]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/because-i-can</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/because-i-can</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Fri, 07 Jun 2024 21:06:12 GMT</pubDate><enclosure url="https://images.ecency.com/p/k75bsZMwYNu2L3iBMXq5y7xeiy1isFJsZxnMZSXuXEsxe4ee1cUkGyPMVkWp5L5M5bqMwp9mP66jD7Qxy2Y2GQgv9JcQpeksgojnDytcJLiUuPdZiEKCXdKKfGaLZy4usnGj5hUG3PeQGnVy1Km4xR6pRXNeh7xpv?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Blindsided… A Bit]]></title><description><![CDATA[Cough-assist Machine A few weeks ago, we had the second annual respiratory appointment since our son was diagnosed with Duchenne muscular dystrophy (DMD). Due to the severity of this condition, the]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/blindsided-a-bit</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/blindsided-a-bit</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Sat, 27 Apr 2024 00:37:54 GMT</pubDate><enclosure url="https://images.ecency.com/p/k75bsZMwYNu2L3iBMXq5y7xeiy1isFJsZxnMZSXuXEsxe4ee1cUkGyPMVkWp5L5M5a5NgqQrDdTne4JiFxfxHbDGehUrm3C3pMBPoV7ZKUCoZFGym7aWmwSncfbeLCsE6vsEstDepAWvtadctCskDtEeLGoeRmh6e?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Birthday Trip]]></title><description><![CDATA[Outside Marvel Stadium the day after the big win It’s my son’s birthday on Thursday and a couple of months ago, I asked him, just in passing, what he thought he’d like to do. He’s fairly predictable and]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/birthday-trip</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/birthday-trip</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Wed, 17 Apr 2024 11:42:45 GMT</pubDate><enclosure url="https://images.ecency.com/p/k75bsZMwYNu2L3iBMXq5y7xeiy1isFJsZxnMZSXuXEsxe4ee1cUkGyPMVkWp5L5M5kiLaCRU2224JzHHv6YCa4qsdWAuF9D1KqAUDkZGTzwM7pA4D4chX7x1HmuEL2xL8SUEH25N9ESjzMp9FPUvwYU4cUnA7Rq1g?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Often Unsure]]></title><description><![CDATA[One of the many problems with a muscle-wasting condition is that you can't always see the regression happening. Kind of like how your hair grows, it happens slowly and one day, you look in the mirror and]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/often-unsure</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/often-unsure</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Sun, 31 Mar 2024 07:47:21 GMT</pubDate><enclosure url="https://images.ecency.com/p/FUkUE5bzkAZT3HzV5tJDiU2ik81PCd4JCyhWnRcDN8XJsVFY3UNB8DCScminp66Eq7XvZuVofJhARPhouHx1hpYdHmviWS6BWgLTEQNpTDoXQCGVsNvs5sits7XJn3bhpG6wxFC3UzxJo5NyP8odN8FZtEkGZY1NHUES?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[I Don't Think We Can Be Friends]]></title><description><![CDATA[When dealing with a condition such as Duchenne muscular dystrophy, where muscles regress, it's really important that you look beyond the here and now, and plan with future needs in mind too. With my son's]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/i-dont-think-we-can-be-friends</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/i-dont-think-we-can-be-friends</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Thu, 21 Mar 2024 04:09:03 GMT</pubDate><enclosure url="https://images.ecency.com/p/4HFqJv9qRjVecs4xkhd5EvhidWEEBnn9tCVDBkBhQpUFvab78MhbU1VsfTu4an7AvwwgsC9t5FfcdsX8FmQp4T7FdJ8JLz2s3R19ciz9LkwKHF57V2Rrch3SBqVytBN7GVpHWShMsdGVWdXx7YzAxaUipm45u3QWFvv?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[I'm Not Sure I Can]]></title><description><![CDATA[I wrote a week ago about my son's upcoming camp and how I hope, despite his condition, that he enjoys it as much as I used to enjoy school camps. You can read that post here, if you wish. Well, we went.]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/im-not-sure-i-can</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/im-not-sure-i-can</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Sat, 16 Mar 2024 05:13:00 GMT</pubDate><enclosure url="https://images.ecency.com/p/k75bsZMwYNu2L3iBMXq5y7xeiy1isFJsZxnMZSXuXEsxe4ee1cUkGyPMVkWp5L5M5bezrWRpN8ojNJkpzKAWeYL3fmqXfxhWaSPniUN6CYDbe3bq1PVtUvs6LFhJakZpq8GCJ3uBcAgJ8Dma8KfzovYduAMwyyr9t?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Everything Is Different]]></title><description><![CDATA[I remember school camps as exciting events. A chance to let your hair down and escape the confines of overbearing parents and jump straight into the proverbial arms of overbearing teachers. Be that as]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/everything-is-different</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/everything-is-different</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Sun, 10 Mar 2024 08:02:54 GMT</pubDate><enclosure url="https://images.ecency.com/p/5ShzsKnKF7vqASPAqXGPakzgncLgnonBpRauPEjcSeiiBywmjPqUmDYmXY9dDQRkmQT2jP6T8XH9v3mLJspEwHyJ5yynU5KoFBtKMeQaX9ofPTPQMRasD2zn4ruJa4VWTFBa9qsp4rbSYerXeu4we8q4?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Save Our Sons and Walk For Duchenne]]></title><description><![CDATA[This week we've been lucky enough to be a part of Walk for Duchenne, an awareness (and fund) raising initiative spearheaded by Save Our Sons, a charity that is seeking to find a cure for Duchenne muscular]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/save-our-sons-and-walk-for-duchenne</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/save-our-sons-and-walk-for-duchenne</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Wed, 06 Mar 2024 09:14:42 GMT</pubDate><enclosure url="https://images.ecency.com/p/4HFqJv9qRjVecs4xkhd5EvhidWEEBnn9tCVDBkBhQpUFvab78MhbU1VsfTu4an7AvwwHdHVsS4KrkqKqw9T8GQSoWFrskqyA6jQzNzURNrpNVbVhMiVya8FGiGafJLDpfNa3Gus2jsZcNZMLoq6CyqZpW4S2LLoKZqx?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[The Eye of the Beholder]]></title><description><![CDATA[One of the problems with being human is that we don't always see eye to eye. In the process of living life, we forget that we're not living in isolation and that, while we want them to be, our opinions]]></description><link>http://direct.ecency.com/hive-126152/@d-a-d/the-eye-of-the-beholder</link><guid isPermaLink="true">http://direct.ecency.com/hive-126152/@d-a-d/the-eye-of-the-beholder</guid><category><![CDATA[hive-126152]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Tue, 27 Feb 2024 06:12:00 GMT</pubDate><enclosure url="https://images.ecency.com/p/4HFqJv9qRjVecs4xkhd5EvhidWEEBnn9tCVDBkBhQpUFvab78MhbU1VsfTu4an7AvwwHdCLRFCereu512cHwbDPokG5ya9GdS3JeWV149EB97PFdyr8vav84BKdGQQqFBi8FA2NfDNPWSbvAsb9Ebf3Ha5Z8YzPuzmC?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Whatever You Have To Do, Find An Excuse To Win]]></title><description><![CDATA[Sometimes life has a way of pulling us down. It can quickly and easily overwhelm and crush the spirit. For a long time, I've been a firm believer that we should never, ever, give up, and for just as long]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/whatever-you-have-to-do-find-an-excuse-to-win</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/whatever-you-have-to-do-find-an-excuse-to-win</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Fri, 23 Feb 2024 10:59:24 GMT</pubDate><enclosure url="https://images.ecency.com/p/4HFqJv9qRjVecs4xkhd5EvhidWEEBnn9tCVDBkBhQpUFvab78MhbU1VsfTu4an7AvwwetBzRAhM384ZDdN3xxbfWU4RgY7dShXbGHMebAqfCNV7bKym5BzpGbGGw7VQZBqSuu8kbSx4HRYVB9Q88dCS6ojX7hNR9zRL?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Coming soon]]></title><description><![CDATA[Launching 15.02.2024 ▶️ 3Speak]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/dlulxejabm</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/dlulxejabm</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Mon, 12 Feb 2024 09:17:06 GMT</pubDate><enclosure url="https://images.ecency.com/p/2r8F9rTBenJQoosNsVw9WJafvPxyXbJFMpTYNQtoHMdKFpVGAGW9g7mUbYwTwKkT2qcfFuN5h7nggtDx23neh6J22QuZtszh9nAez5pJv7AbxKVGU5oTtkHgFN9uA7j1J?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[The Invisibility from Disability]]></title><description><![CDATA[A lot of my time in the past couple of years has been devoted to quiet contemplation. I've always enjoyed solitude and having time to just think and ponder, but since my son's diagnosis, I've really, almost,]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/the-invisibility-from-disability</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/the-invisibility-from-disability</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Fri, 26 Jan 2024 21:47:54 GMT</pubDate><enclosure url="https://images.ecency.com/p/4HFqJv9qRjVecs4xkhd5EvhidWEEBnn9tCVDBkBhQpUFvab78MhbU1VsfTu4an7AvwwUpfdFuhShugQrD648JT3U3wVt9Myj15hkoGSAgr2VQyaqgbe6dMQm4S3gJ1JKLWTT7RnjNaC4WajCmi1A9McBo6zaJGyLdyG?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Good Grief - Learning About The Stages of Grief]]></title><description><![CDATA[Following from my introductory post about grief and how I’ve experienced it over the past couple of years now, I’d like to have a quick look at the stages of grief. In my experience, I didn’t track how]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/good-grief-learning-about-the-stages-of-grief</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/good-grief-learning-about-the-stages-of-grief</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Sun, 14 Jan 2024 05:02:21 GMT</pubDate><enclosure url="https://images.ecency.com/p/AmRc67RgYaWTamZtjiRVK9pxDgRdg2RtnXmG5dbeGuzK3WNfkBktwpfbYtYgDJv6TQhNDQUSkNWcnTF3xRg6X9Wbgrt4wd7HLLEp57k4T8aRw5VKWBGnDawxW3UTivjudgMmwNZbcZv3PqvsmhCvAKKhXafqGsY2?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Good Grief - An Introduction]]></title><description><![CDATA[I've read about grief and have always counted my blessings at having never experienced it in its truest form. I can't even really recall knowing anyone who has ever experienced it in its truest form. I]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/good-grief-an-introduction</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/good-grief-an-introduction</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Sun, 31 Dec 2023 22:49:51 GMT</pubDate><enclosure url="https://images.ecency.com/p/AmRc67RgYaWTamZtjiRVK9pxDgRdg2RtnXmG5dbeGuzK3WNfkBktwpfbYtYgDJv6TQhNDmH9nYF9kkbALdq19MbUM4AEuHH495jzFPD2Xwgde1RUeVxT5mKwT7ZLsfF1RnmjhSJjR9ikAJbSN5hTAkhJpd7zTF3U?format=match&amp;mode=fit" length="0" type="false"/></item></channel></rss>