<?xml version="1.0" encoding="UTF-8"?><rss xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:atom="http://www.w3.org/2005/Atom" version="2.0"><channel><title><![CDATA[RSS Feed]]></title><description><![CDATA[RSS Feed]]></description><link>http://direct.ecency.com</link><image><url>http://direct.ecency.com/logo512.png</url><title>RSS Feed</title><link>http://direct.ecency.com</link></image><generator>RSS for Node</generator><lastBuildDate>Mon, 20 Apr 2026 21:30:17 GMT</lastBuildDate><atom:link href="http://direct.ecency.com/created/duchennemusculardystrophy/rss.xml" rel="self" type="application/rss+xml"/><item><title><![CDATA[Accessible Playground Review 2 - A Much Better Option]]></title><description><![CDATA[This time around, we founf a playground that has a lot going for it from an accessible point of view. There's a Liberty swing whcih can take a wheelchair, a ramp on the play equipment, and a lot of other]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/sfkarobs</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/sfkarobs</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Sat, 01 Mar 2025 08:54:06 GMT</pubDate><enclosure url="https://images.ecency.com/p/99pyU5Ga1kwr5bsMXthzYLbcngN4W2P8NtU9TWTdHC3HaQbjuuRfKKVdjVgMp4FvQdW5pdfMYmJ8yXAzJCXxeQyVDXwRn643JFeN8NCrqYeatYeW7P7vTQkW7GqrZYHNGe?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Accessible Playground Review Number 2 - We Were Duped]]></title><description><![CDATA[This is our second accessible playground review and we kind of had high hopes for it. We'd been told that the recently renovated playground had been given accesible features. We had high hopes! ▶️ 3Speak]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/fxtgjmck</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/fxtgjmck</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Fri, 07 Feb 2025 13:24:06 GMT</pubDate><enclosure url="https://images.ecency.com/p/99pyU5Ga1kwr5bsMXthzYLbcngN4W2P8NtU9TWTdHC3HaQbjuuRfKKVdjVdAopbdPDpQztTdT4xGuiLydG5xyxQPCyGNojbRofYaRze3439CNPjzp4uHPQuufjCjJ155wc?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[2025 Goals - Review Playgrounds for Accessibility]]></title><description><![CDATA[My son was diagnosed with Duchenne muscular dystrophy nearly 3 years ago and in recent times, I've begun to notice that most public playgrounds are highly inaccessible for people who use mobility aids.]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/jojlzdsd</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/jojlzdsd</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Fri, 24 Jan 2025 10:07:06 GMT</pubDate><enclosure url="https://images.ecency.com/p/99pyU5Ga1kwr5bsMXthzYLbcngN4W2P8NtU9TWTdHC3HaQbjuuRfKKVdjVbFecYGjt49ed1ytFRmcC3HeGYL4hjMB27K1JDPxdpPWVNXyYgXgh3eebKfRibTwGfuDd5Ugn?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Before We Received the Diagnosis]]></title><description><![CDATA[This video was taken a few years before we received my son's Duchenne muscular dystrophy diagnosis. I remember, back then, thinking that he had really good calf muscles. Didn't know at the time, that]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/aeounbyu</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/aeounbyu</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Thu, 16 Jan 2025 22:58:06 GMT</pubDate><enclosure url="https://images.ecency.com/p/99pyU5Ga1kwr5bsMXthzYLbcngN4W2P8NtU9TWTdHC3HaQbjuuRfKKVdjVgYv4hmdQkPJALYExPMKC4WMoPt6DwAsuzCKmQugwLLMs6axkkLmyioMkSfPAaKWSQ45SoTv6?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Awareness Raising Walk 2024]]></title><description><![CDATA[A little over a week ago I completed the awareness/fundraising walk that my previous couple of posts have been in reference to. The goal was to, primarily, raise awareness of Duchenne muscular dystrophy]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/awareness-raising-walk-2024</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/awareness-raising-walk-2024</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Tue, 01 Oct 2024 23:39:42 GMT</pubDate><enclosure url="https://images.ecency.com/p/k75bsZMwYNu2L3iBMXq5y7xeiy1isFJsZxnMZSXuXEsxe4ee1cUkGyPMVkWp5L5M5aLxuupYsC17XLCSsnhowepTTJoycwzynoyn4z51UFk7V6bXsN8P4UhpTFzMHETRAYHwLaysGrVY7tfyi5pgkxoD4Kn9QBk1U?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Resilience - A (Very) Short Story]]></title><description><![CDATA[Resilience is, in general terms, the ability to cope with stressful events without becoming overwhelmed by them. I know a little boy, who this week, went to the dentist to have a baby tooth extracted because]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/resilience-a-very-short-story</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/resilience-a-very-short-story</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Sat, 17 Aug 2024 06:09:09 GMT</pubDate><enclosure url="https://images.ecency.com/p/2VZXybTSZJq1EFEMqZ2iEs7VKxvmFVY6eLE22jxtvUD9ojf1SpbeBSeVetsqVPvQqZPNBZxmj5dZmh2SjVjRx5wAe9djMyitH4hg7dWuP2bHQYL1vfnvNdovFSmhKafdrFtyRBpfzAjeUGGN8fVVrs3otQv?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[You Can’t Stop]]></title><description><![CDATA[As I continue preparing for the upcoming awareness/fund raising event, I've been completing early morning walks in the hope that I'll be conditioned enough to finish the 79 kilometres. While I've alwaye]]></description><link>http://direct.ecency.com/hive-181335/@d-a-d/akpnyhcf</link><guid isPermaLink="true">http://direct.ecency.com/hive-181335/@d-a-d/akpnyhcf</guid><category><![CDATA[hive-181335]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Thu, 11 Jul 2024 23:58:06 GMT</pubDate><enclosure url="https://images.ecency.com/p/99pyU5Ga1kwr5bsMXthzYLbcngN4W2P8NtU9TWTdHC3HaQbjuuRfKKVdjVifZXrjZCP3bWde6VfV1DCqLAFTXusG95acJmtvxNUuma4ehS4E6H1jk1dn5Q5Qiuyq1oNrzz?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Blindsided… A Bit]]></title><description><![CDATA[Cough-assist Machine A few weeks ago, we had the second annual respiratory appointment since our son was diagnosed with Duchenne muscular dystrophy (DMD). Due to the severity of this condition, the]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/blindsided-a-bit</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/blindsided-a-bit</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Sat, 27 Apr 2024 00:37:54 GMT</pubDate><enclosure url="https://images.ecency.com/p/k75bsZMwYNu2L3iBMXq5y7xeiy1isFJsZxnMZSXuXEsxe4ee1cUkGyPMVkWp5L5M5a5NgqQrDdTne4JiFxfxHbDGehUrm3C3pMBPoV7ZKUCoZFGym7aWmwSncfbeLCsE6vsEstDepAWvtadctCskDtEeLGoeRmh6e?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Birthday Trip]]></title><description><![CDATA[Outside Marvel Stadium the day after the big win It’s my son’s birthday on Thursday and a couple of months ago, I asked him, just in passing, what he thought he’d like to do. He’s fairly predictable and]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/birthday-trip</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/birthday-trip</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Wed, 17 Apr 2024 11:42:45 GMT</pubDate><enclosure url="https://images.ecency.com/p/k75bsZMwYNu2L3iBMXq5y7xeiy1isFJsZxnMZSXuXEsxe4ee1cUkGyPMVkWp5L5M5kiLaCRU2224JzHHv6YCa4qsdWAuF9D1KqAUDkZGTzwM7pA4D4chX7x1HmuEL2xL8SUEH25N9ESjzMp9FPUvwYU4cUnA7Rq1g?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Save Our Sons and Walk For Duchenne]]></title><description><![CDATA[This week we've been lucky enough to be a part of Walk for Duchenne, an awareness (and fund) raising initiative spearheaded by Save Our Sons, a charity that is seeking to find a cure for Duchenne muscular]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/save-our-sons-and-walk-for-duchenne</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/save-our-sons-and-walk-for-duchenne</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Wed, 06 Mar 2024 09:14:42 GMT</pubDate><enclosure url="https://images.ecency.com/p/4HFqJv9qRjVecs4xkhd5EvhidWEEBnn9tCVDBkBhQpUFvab78MhbU1VsfTu4an7AvwwHdHVsS4KrkqKqw9T8GQSoWFrskqyA6jQzNzURNrpNVbVhMiVya8FGiGafJLDpfNa3Gus2jsZcNZMLoq6CyqZpW4S2LLoKZqx?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[The Eye of the Beholder]]></title><description><![CDATA[One of the problems with being human is that we don't always see eye to eye. In the process of living life, we forget that we're not living in isolation and that, while we want them to be, our opinions]]></description><link>http://direct.ecency.com/hive-126152/@d-a-d/the-eye-of-the-beholder</link><guid isPermaLink="true">http://direct.ecency.com/hive-126152/@d-a-d/the-eye-of-the-beholder</guid><category><![CDATA[hive-126152]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Tue, 27 Feb 2024 06:12:00 GMT</pubDate><enclosure url="https://images.ecency.com/p/4HFqJv9qRjVecs4xkhd5EvhidWEEBnn9tCVDBkBhQpUFvab78MhbU1VsfTu4an7AvwwHdCLRFCereu512cHwbDPokG5ya9GdS3JeWV149EB97PFdyr8vav84BKdGQQqFBi8FA2NfDNPWSbvAsb9Ebf3Ha5Z8YzPuzmC?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Whatever You Have To Do, Find An Excuse To Win]]></title><description><![CDATA[Sometimes life has a way of pulling us down. It can quickly and easily overwhelm and crush the spirit. For a long time, I've been a firm believer that we should never, ever, give up, and for just as long]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/whatever-you-have-to-do-find-an-excuse-to-win</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/whatever-you-have-to-do-find-an-excuse-to-win</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Fri, 23 Feb 2024 10:59:24 GMT</pubDate><enclosure url="https://images.ecency.com/p/4HFqJv9qRjVecs4xkhd5EvhidWEEBnn9tCVDBkBhQpUFvab78MhbU1VsfTu4an7AvwwetBzRAhM384ZDdN3xxbfWU4RgY7dShXbGHMebAqfCNV7bKym5BzpGbGGw7VQZBqSuu8kbSx4HRYVB9Q88dCS6ojX7hNR9zRL?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Coming soon]]></title><description><![CDATA[Launching 15.02.2024 ▶️ 3Speak]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/dlulxejabm</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/dlulxejabm</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Mon, 12 Feb 2024 09:17:06 GMT</pubDate><enclosure url="https://images.ecency.com/p/2r8F9rTBenJQoosNsVw9WJafvPxyXbJFMpTYNQtoHMdKFpVGAGW9g7mUbYwTwKkT2qcfFuN5h7nggtDx23neh6J22QuZtszh9nAez5pJv7AbxKVGU5oTtkHgFN9uA7j1J?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[The Invisibility from Disability]]></title><description><![CDATA[A lot of my time in the past couple of years has been devoted to quiet contemplation. I've always enjoyed solitude and having time to just think and ponder, but since my son's diagnosis, I've really, almost,]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/the-invisibility-from-disability</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/the-invisibility-from-disability</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Fri, 26 Jan 2024 21:47:54 GMT</pubDate><enclosure url="https://images.ecency.com/p/4HFqJv9qRjVecs4xkhd5EvhidWEEBnn9tCVDBkBhQpUFvab78MhbU1VsfTu4an7AvwwUpfdFuhShugQrD648JT3U3wVt9Myj15hkoGSAgr2VQyaqgbe6dMQm4S3gJ1JKLWTT7RnjNaC4WajCmi1A9McBo6zaJGyLdyG?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Good Grief - Learning About The Stages of Grief]]></title><description><![CDATA[Following from my introductory post about grief and how I’ve experienced it over the past couple of years now, I’d like to have a quick look at the stages of grief. In my experience, I didn’t track how]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/good-grief-learning-about-the-stages-of-grief</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/good-grief-learning-about-the-stages-of-grief</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Sun, 14 Jan 2024 05:02:21 GMT</pubDate><enclosure url="https://images.ecency.com/p/AmRc67RgYaWTamZtjiRVK9pxDgRdg2RtnXmG5dbeGuzK3WNfkBktwpfbYtYgDJv6TQhNDQUSkNWcnTF3xRg6X9Wbgrt4wd7HLLEp57k4T8aRw5VKWBGnDawxW3UTivjudgMmwNZbcZv3PqvsmhCvAKKhXafqGsY2?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Good Grief - An Introduction]]></title><description><![CDATA[I've read about grief and have always counted my blessings at having never experienced it in its truest form. I can't even really recall knowing anyone who has ever experienced it in its truest form. I]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/good-grief-an-introduction</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/good-grief-an-introduction</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Sun, 31 Dec 2023 22:49:51 GMT</pubDate><enclosure url="https://images.ecency.com/p/AmRc67RgYaWTamZtjiRVK9pxDgRdg2RtnXmG5dbeGuzK3WNfkBktwpfbYtYgDJv6TQhNDmH9nYF9kkbALdq19MbUM4AEuHH495jzFPD2Xwgde1RUeVxT5mKwT7ZLsfF1RnmjhSJjR9ikAJbSN5hTAkhJpd7zTF3U?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Anyone Esle Got Kids Who've Needed Infusions?]]></title><description><![CDATA[Unfortunately for long term steroid users, bones can quickly become weak, and for a child with Duchenne muscular destrophy, this can easily lead to breakages. For a child with DMD, not walking, or using]]></description><link>http://direct.ecency.com/hive-177682/@d-a-d/hfuwcqbu</link><guid isPermaLink="true">http://direct.ecency.com/hive-177682/@d-a-d/hfuwcqbu</guid><category><![CDATA[hive-177682]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Wed, 27 Dec 2023 06:20:06 GMT</pubDate><enclosure url="https://images.ecency.com/p/99pyU5Ga1kwr5bsMXthzYLbcngN4W2P8NtU9TWTdHC3HaQbjuuRfKKVdjVcPgJ43JBMESudE2bKTawxCV2vDMqK8cXSWx6kgLRaVPJKGTY7YifCjKGJGsR7rccNJEN2feW?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[Life's Crucible]]></title><description><![CDATA[A few weeks ago my daughter came home from school with a worksheet that contained basic shapes such as a circle, rectangle, square and other shapes that were age appropriate for Year 1's. I noticed that]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/lifes-crucible</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/lifes-crucible</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Mon, 18 Dec 2023 23:39:06 GMT</pubDate><enclosure url="https://images.ecency.com/p/4HFqJv9qRjVecs4xkhd5EvhidWEEBnn9tCVDBkBhQpUFvab78MhbU1VsfTu4an7AvwwTEoV7MxxbxmmsWG4hiwF3bEtrmK4qmGdTsSx2aJKxjQd6JmdFXfusnRNdGM3W9JpYhfdhuRH4cTCk2SA2rHMJBanJaZ4YhEE?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[10,372 - Part Three]]></title><description><![CDATA[This is the third post in this series, please read the first two posts before continuing. You can find Part One here: 10,372 - Part One, and Part Two here: 10,372 - Part Two. We departed the doctor's office]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/10372-part-three</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/10372-part-three</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Mon, 27 Nov 2023 23:06:24 GMT</pubDate><enclosure url="https://images.ecency.com/p/4HFqJv9qRjVecs4xkhd5EvhidWEEBnn9tCVDBkBhQpUFvab78MhbU1VsfTu4an7AvwvtreWPGA6duehGCpJXbXhXTiaczurAuU5NNgvqufJDLZ4AUJLiAiRWqTnqpJ6T3CuEoqQrVT8kYZzErujxkooaJApjdZKGbhQ?format=match&amp;mode=fit" length="0" type="false"/></item><item><title><![CDATA[10, 372 - Part Two]]></title><description><![CDATA[This is the second post in this series, please read the first post before continuing. You can find it here: 10,372 - Part One. Our frustrations continued to mount at not being able to nail down what was]]></description><link>http://direct.ecency.com/hive-140084/@d-a-d/10-372-part-two</link><guid isPermaLink="true">http://direct.ecency.com/hive-140084/@d-a-d/10-372-part-two</guid><category><![CDATA[hive-140084]]></category><dc:creator><![CDATA[d-a-d]]></dc:creator><pubDate>Sun, 19 Nov 2023 02:37:27 GMT</pubDate><enclosure url="https://images.ecency.com/p/4HFqJv9qRjVecs4xkhd5EvhidWEEBnn9tCVDBkBhQpUFvab78MhbU1VsfTu4an7AvwvtreWPGA6duehGCpJXbXhXTiaczurAuU5NNgvqufJDLZ4AUJLiAiRWqTnqpJ6T3CuEoqQrVT8kYZzErujxkooaJApjdZKGbhQ?format=match&amp;mode=fit" length="0" type="false"/></item></channel></rss>