Vanellope Hope Wilkins, who had her first surgery within an hour of delivery, is believed to be first baby in UK to survive with the extremely rare condition
A baby girl born with her heart outside her body is believed to be the first in the UK to survive with the extremely rare condition after undergoing three operations, the first within an hour of her birth.
At a nine-week scan, Vanellope Hope Wilkins was discovered to have the condition ectopia cordis, with her heart and part of her stomach growing externally.
The couple said they were told the first 10 minutes after birth were crucial as her ability to breathe would be essential. “But when she came out and she came out crying, that was it. The relief fell out of me,” said her mother. Her father said: “Twenty minutes went by and she was still shouting her head off – it made us so joyful and teary.”
Vanellope has undergone three operations carried out by a team of 50 staff at Glenfield Hospital. Immediately after her birth, she was wrapped in a sterile plastic bag. Consultant neonatologist Jonathan Cusack said: “At around 50 minutes of age, it was felt that Vanellope was stable enough to be transferred back to the main theatre, where she had been born, to the waiting anaesthetists, congenital heart disease and paediatric surgical teams who began the task of putting her entire heart back inside her chest.”