Thalassemia is a disease of anemia. About 8 to 10 thousand children are born in our country every year due to death of this disease. After a child comes to life after life, it is not seen in children with thalassemia. Dhaka is a life of depression. The dream of a mother with her child, the love of emotions disappears in the moment. It is possible to avoid such a tragic event if you are a little aware. Thalassemia treatment is extremely expensive. It has to continue the treatment throughout life. The permanent treatment for this disease is 'Bone Marrow Transplantation' and Gene Theropy. Such treatment is not possible for everyone. So it is possible to prevent this disease only if it is a little aware.
What is thalassemia? : Thalassemia anemia is a hereditary disease. In patients with thalassemia, the blood clot is not adequately prepared in the body. As a result, their fatal anemia arises. Thalassemia patients have to take 1/2 bags of blood every month. They survived by taking this blood. If such patients are not treated then they die due to blood pressure.How is thalassemia? : There are two genes for making blood in the human cell. If there is a gene error in the formation of a person's blood, then he is a thalassemia carrier. And if there are two genes, then they are thalassemia patients.
If a thalassemia carrier is married to another carrier, then each child has the possibility of thalassemia 25 percent. In this type of family there is the prevalence of being infected with thalassemia. However, there is no relation with the blood group of thalassemia. This problem is greatly reduced when the blood tests before marriage.Symptoms of Thalassemia: Signs of this disease usually occur from the age of three months. Thalassemia is diagnosed within 1 to 2 years of childbirth. There are some symptoms of this disease. Such as pale-thirsty, stomach-sucking, food after vomiting, frequent infections, jaundice, irritative mood, blood glucose levels of 3 to 5 grams or desiliter. They often suffer from colds, coughs and fever for bacterial infections. In a word, if the patient becomes pale or yellow, shows him as farmer or younger than his age, stomach looks big, then it is suspected to have a disease.
Thalassemia treatment is not there? : There is the treatment of thalassemia disease. However, its treatment is extremely complex and expensive. To compensate for the vaccination, patients have to pay 1-2 bags each month. Besides, they have to take various types of medicines to remove harmful iron from their body. For the treatment of a child, the cost of 5 to 10 thousand rupees is spent every month.
In this context Dr. Abdur Rahim said, 'there is therapeutic treatment. But it is expensive. It is possible to treat it with bone marrow transplants. In this case, there should be matching between brothers and sisters. The cost of treatment is about 20 to 25 lakhs. However, the treatment of transplantation in our country has not started yet. The Dhaka Medical College is trying to start. '
Is there any way to save thalassemia? : Dr. Rahim said, "There is nothing to fear about thalassemia. They have no problem other than having less blood in the body. They can do everything. Game-everything from the study of dust. We have many patients here who are studying at the university. Working in the bank.
"If someone is infected with this disease, they do not die immediately. They slowly become like paralyzed patients. Thus there is a possibility of surviving for ten years. If we take treatment on the other side, we can live 50 to 60 years. " Rahim
His comment is, "Now we have to decide whether they will be stuck in the grip or they will survive as an active man of our society. Otherwise they will be like burdensome or disabled. So we are trying that they should not be burdened with the society. "He said.
Thalassemia has many families who are not able to bear the child's expenditure. There are many people worrying about having low family income anxiety There is no clue about what to do with this disease-affected child. In order to save these helpless patients, for the sake of society, so that they do not get burdened, Thalassemia Freedom is trying to save their lives by collecting zakat.
Dr. Rahim said, 'We are undergoing treatment in the day care system here. About 20 to 50 patients are being treated daily. We are giving treatment every day. Which is not possible for other hospitals. May come out from outside Dhaka and take treatment in the afternoon. But the financial condition of many patients is not good. Someone's monthly income is less than Tk 10 thousand. As a result they will treat the child or run the family. We are collecting zakat for the patient's medical assistance, seeing their helplessness. '
According to him, "if they treat the thalassemia properly, they will not have any problem. They can live normal life. But many people are unable to get treatment due to financial crisis. If not treated, it is a big loss for the country. The number of disabled people in the country will increase. Being understood as a burden. So all of us need to come forward with the cooperation of these children.
