Rare Disease Day
A rare or rare disease is one that affects a small absolute number of people or a small proportion of the population.
Different countries and regions of the world have different legal definitions for these cases. In Europe, a disease that affects 1 in 2000 people is considered rare. In the United States, it is defined as a disorder or disease suffered by fewer than 200,000 people, while in Japan it affects less than 50,000. In Taiwan the criterion is that the prevalence is 1 in 10,000, and for its part in Australia the number of affected must be less than 2000 individuals.In any case, these are very low percentages of the population (in Europe, for example, only 0.05%), a situation that requires unified special efforts and international coordination to combat it.
There are between 5,000 and 7,000 known rare or rare diseases, the vast majority of which are caused by genetic defects, although there are also by effects of environmental exposure during pregnancy, or after birth, often in combination with genetic susceptibilities. It is also estimated that around 4,000 of these diseases have no curative treatments.
Since 2008, on February 29, a "rare" day, the World Day for rare or rare diseases is commemorated in several countries of the world. This day is celebrated annually, in such a way that if the year is not leap, the activities and events take place on February 28.
Let's go find Luke
The End