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Amelie, a 5 year old with a diagnosis of moderate classic kanner autism. She does not speak and also wears a nappy.
What many don't know about children with her condition, as we know it is a condition and not a disease, is that they often don't feel pain before injuries or blows.
In addition to not being able to understand what exactly he wants, due to lack of speech, there are the involuntary blows and injuries, which we cannot avoid.
Amelie, tiene 5 años con un diagnóstico de autismo clasico de kanner moderado. Ella no habla y además usa pañal.
Lo que muchos no saben de niños con su condición, pues sabemos que es una condición y no una enfermedad, es que ellos muchas veces no sienten dolor antes las heridas o golpes.
Además de no poder comprender que es lo que exactamente quiere, por si falta de habla, estan los golpes y las heridas involuntarios, que no podemos evitar.
As parents, during her first years of life, this was something that worried us a lot. Having to bathe Amelie and finding a bump or even worse an injury, was something that made me very upset and made me check her all the time.
Amelie was only a few months old when she fell off a lorry, riding in her baby carrier, on two occasions and not because we were not looking after her, they were very strange and sudden events.
Como padres, durante sus primeros años de vida, esto fue algo que nos preocupó muchísimo. Tener que bañar a Amelie y encontrarle un golpe o peor aún una herida, era algo que me ponía muy mal y me hacia revisarla siempre.
Amelie estando con apenas unos meses de nacida, senos cayó de un camión, montada en su portabebés, en dos ocasiones y no por que no estuviéramos al pendiente de ella, fueron sucesos muy extraños y repentinos.
He has cut himself, hit himself and even fallen involuntarily and very rarely has he cried, now that he is 5 years old he does react more to pain, when something happens, but then he gets over it, although it can still hurt.
At the moment he still wears nappies, he no longer talks and doesn't tell us what he needs, but where we live (the Ecuadorian coast), it's very hot, very hot in summer and although it sounds crazy, it's even hotter in winter.
Se ha cortado, golpeado e incluso caído y muy pocas veces ha llorado,ahora que tiene 5 años si reacciona más al dolor, al momento de suceder algo, pero luego es superado, aún cuando todavía pueda dolerle.
En la actualidad, ella sigue usando pañales, ya no habla y no avisa sobre sus necesidades, pero donde vivimos (La costa Ecuatoriana), hace demsiado calor, tanto en verano y aunque suene loco, más calor hace en invierno.
The heat makes her nappy itchy, I change her up to 6 or 7 nappies a day, as she is a big girl, she urinates more often. She scratches herself and when she has long nails she breaks them.
She won't let me cut her nails, I have to wait until she falls asleep to cut them and very carefully, so as not to wake her up, although sometimes I fall asleep before she does, as she is unstoppable and never seems to run out of steam.
We have been struggling for a few weeks with a sort of allergy or sore that has developed on the back of her hip or buttocks, which has caused us concern. There are currently no specialist doctors or medical appointments, due to the covid and we have had to treat her at home.
El calor hace que el pañal le pique, le cambio hasta 6 o 7 pañales diarios, pues es una niña grande, orina con más frecuencia. Ella se rasca y cuando tiene las uñas largas se rompe.
Ella no se deja cortar las uñas, debo esperar que se duerma para córtalas y con sumo cuidado, para no despertarla, aunque a veces me quedo dormida primero que ella, pues es imparable y parece nunca agotarse.
Tenemos uns semanas luchando con una especie de alergia o herida que le ha salido en la parte de atrás de su cadera o nalgas, que nos ha causado preocupación. Actualmente no hay médicos especialistas o citas médicas, debido al covid y nos ha tocado curarla en casa.
I have washed her with camomile water, but I would really like to know what else I can do for her. Here there are plants and things that I don't know about, they don't have a current paediatric control because of covid issues and I want her to be cured.
Besides showing you the other side of autism, the one where our children suffer blows, wounds and tolerate pain that others their age do not, I would like help to treat Amelie and I would appreciate it.
La he lavado con agua de manzanilla, pero la verdad quisiera saber que más podría hacer por ella. Aquí hay plantas y cosas que desconozco, no tienen un control pediátrico actual por cuestiones del covid y deseo que ella se cure.
Además de mostrarles la otra cara del autismo, esa dónde nuestros niños, sufren golpes, heridas y toleran dolor que otros a su edad no, quisiera ayuda, para poder tratar a Amelie y lo agradecería.
I have always said that special parents have special children, because they need a lot of patience and only with a lot of love can we take them far.
What surprises me most about Amelie, is that despite this situation or any other, she remains calm, smiles and carries on as if nothing had happened. She cries, if she gets hit hard, which she didn't do before, but she calms down immediately, she is very brave.
Siempre he dicho que padres especiales, tienen niños especiales, pues a ellos hay que tenerles mucha paciencia y solo con mucho amor podemos llevarlos lejos.
Lo que más me sorprende de Amelie, es que a pesar de esta situación o cualquier otra, ella permanece tranquila, sonríe y sigue como si nada. Llora, si se golpea fuerre, cosa que antes no hacía, pero se calma enseguida, es muy valiente.
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