I'm sorry to hear about the things that you are struggling with. I learned recently that I have (h)EDS myself and it helps to know about it and understand . But it is very frustrating to feel thwarted in doing the things that you want or need to do...I hope that you continue to find all the wonderful details that make things easier and more comfortable and even enjoyable, from the small and everyday talks to the bigger projects and dreams. Thank you for sharing about your experiences.