Thanks for sharing.
I don't feel a need to research what you say independently, I trust what you're saying is true.
You have a good technical grasp on your condition. What you describe sounds hellish, all I can do is wish you well.
Only look at the contents of the link if you yourself are interested. It's literally just a landing page for a state government enquiry.
Youe life sounds dominated by the hardship you face. It would be harrowing. Do you experience small joys at times in there? I feel like I'm trying to change the subject and I suppose I am, but I'm interested
RE: I'm still alive-not ready to return