I have been inconsistent on here an my main account for a while . I am still recovering. I have multiple chronic illnesses so i am always recovering lol.
I also want to state again I am doing all this recovering all on my own. 30+ years still waiting to be taken seriously by doctors. I get zero medical help and no treatments. I am in agonizing pain most days and am getting a lit more twitches and spasms lately.
TW: euthanasia. I am also grieving the deaths of many people in my illness community that have chosen medically assisted euthanasia recently because they also are left with no treatments and people can only suffer for so long. Suicide rates amongst my patient group at 6x that of the general population . This is not because of depression or mental illness(depression and mental health issues are serious illnesses that deserve respect empathy and treatments that work). This is the only way some folks have to end the suffering.
Their blood is on the hands of governments and health care providers worldwide who continue to ignore, mistreat and abuse us. Effectively no funding for research and researching proving these illnesses are biological in nature pre date when i was born, but it doesn't matter.
I also have stuff going on in my personal life. Nothing terrible or anything but more house renovations and other stuff.
I am struggling with having the energy to keep up with any of it. I mean that in a chronically debilitated kind of way, not just being "tired".
I want to resume posting and donations etc but am struggling just to eat a meal most days. Showering takes up literally all my energy for the day (and then some as it constantly crashes me).
I am still here and fighting and will be back soon.