Que bonito ver tantas publicaciones relacionadas a este dia que nos une, la Concienciación sobre el Autismo. Este dia comenzo a tener relevancia para mi luego de que mi pequeña fuera declarada por un psicólogo como autista hace 6 años, desde entonces nuestro mundo cambió y empezamos como familia a tomar conciencia a favor de aquellos como mi pequeña que viven en un mundo que parece no importarles.
Dentro del espectro autista hay varios niveles, no podemos negarlo, pero la verdad que no me gusta encasillar a una persona en base a un número o nivel según sus capacidades, creo que esto puede superarse, pero la realidad es que en efecto hay límites que pueden definir niveles, como el habla o la capacidad de socializar. Mi pequeña tuvo limitantes en el habla y aprendizaje, pero tras mucha terapia, llanto y agotamiento, y mucho pero mucho esfuerzo a sus 8 años puede comunicarse, comienza a leer y escribir fluido.
Pero jamás en sus ocho años mi esposa y yo le hemos dicho que ella es autista, no porque se lo queramos ocultar, porque deseamos que no crea que es una limitante, no se si estemos haciendo bien, pero creemos que llegará el momento para explicárselo y que se de cuenta que tras mucho esfuerzo ella superó aquello que le decían que era una limitante, sin embargo, hoy al buscarla en la escuela la recibí con un cartel que colgaba de su cuello sobre el autismo.
Al principio me pareció un bonito gesto, el mensaje es muy acertado, pero cuando que le pedí que me contara sobre el cartel de su cuello, lo que me dijo me hizo sentir muy incomodo y me dejo reflexionando. Me conto que su maestra le llamó para colocarle ese cartel, ella le pregunta que para que y su maestra le responde que para que lo luzca. Le pregunté si le colocaron cartel a otros de sus compañeros y me dijo que solo a ella se lo pusieron.
Otros en la escuela le preguntaron que tenia colgado y a todos les respondió que era para lucirlo, como le dijo su maestra, sus compañeritos le preguntaron qué era eso de autismo y no supo responderles. No se que piensan ustedes si me leen, pero creo que no obraron bien al solo colocarselo a mi hija, ese cartel era para todo el mundo, porque precisamente el día de hoy es para que los demás tomen conciencia que los autistas deben recibir oportunidades y apoyo para que se puedan integrar con la sociedad, no que sean encasillados dentro de un grupo.
Los momentos mas duros con nuestra pequeña han sido precisamente por la falta de conciencia de otros, adultos y niños, cuando no la escolarizaron porque las escuelas donde íbamos no podían "atenderla", porque las instituciones del estado que apoyen el autismo son inexistentes, porque otros niños no le entienden y pueden ser hirientes al tratarla, fueron muchas cosas que vivimos, pero a pesar del dolor que nos causo, hoy en dia tras mucho trabajo seguimos adelante y demostraremos lo poco consientes que fueron y que no les necesitamos para que mi pequeña tenga éxito.
! [English]
An awkward episode at school for the World Autism Awareness Day
How nice to see so many publications related to this day that unites us, Autism Awareness. This day started to have relevance for me after my little girl was declared by a psychologist as autistic 6 years ago, since then our world changed and we started as a family to become aware in favor of those like my little girl who live in a world that doesn't seem to care.
Within the autistic spectrum there are several levels, we can not deny it, but the truth is that I do not like to pigeonhole a person based on a number or level according to their abilities, I believe that this can be overcome, but the reality is that there are indeed limits that can define levels, such as speech or the ability to socialize. My little girl had limitations in speech and learning, but after a lot of therapy, crying and exhaustion, and much, much effort, at 8 years old she can communicate, she is beginning to read and write fluently.
But never in her eight years have my wife and I told her that she is autistic, not because we want to hide it from her, because we do not want her to believe that it is a limitation, I do not know if we are doing right, but we believe that the time will come to explain it to her and that she will realize that after much effort she overcame what she was told was a limitation, however, today when I looked for her at school I received her with a sign hanging from her neck about autism.
At first I thought it was a nice gesture, the message is very accurate, but when I asked her to tell me about the sign on her neck, what she told me made me feel very uncomfortable and left me wondering. She told me that her teacher called her to put that sign on her neck, she asked her what for and her teacher told her that it was for her to show it off. I asked her if they put the sign on any of her classmates and she told me that they only put it on her.
Others at school asked her what she had hanging and she answered that it was to show it off, as her teacher told her, her classmates asked her what autism was and she didn't know how to answer them. I don't know what you think if you read me, but I don't think they did the right thing by only putting it on my daughter, that sign was for everyone, because today is precisely for others to become aware that autistic people should receive opportunities and support so that they can integrate with society, not to be pigeonholed into a group.
The hardest moments with our little girl have been precisely because of the lack of awareness of others, adults and children, when she was not sent to school because the schools where we went could not "attend" her, because the state institutions that support autism are nonexistent, because other children do not understand her and can be hurtful when treating her, there were many things we lived through, but despite the pain it caused us, today after much work we keep going and we will show how little conscientious they were and that we do not need them for my little girl to be successful.
Fotos tomadas con mi Redmi Note 9s