NO es fácil tener un niño con autismo // It is NOT easy to have a child with autism
Hace 2 semanas, comenzando la tercera semana el día de ayer, comenzamos a tener rutinas diferentes en casa con respecto a las responsabilidades que debemos tener como familia y sociedad. Ya esto lo he colocado en mis post anteriores, pero siempre hay un nuevo lector que no conoce el tema.
César ha tenido muchos cambios de humor y ha tenido respuestas muy groseras, él usualmente no tenía esa clase de reacciones, eran más berrinches y bloqueos por cambios de actividades que podían transcurrir en el día. Ayer entré en una crisis madre e hijo.
Muchas personas que tienen hijos autistas, no sé cómo se manejan en casa, pero yo soy madre soltera y hago todo el esfuerzo que puedo para que mi hijo esté bien física y mentalmente, ayer cuando lo llevé al karate volvió a tener crisis de comportamiento, y como muchos saben, a los niños con condiciones las nalgadas o golpes a tiempo NO SIRVEN, no por eso quiere decir que no se les ponga disciplina.
This month is the blue month of autism, which is precisely why my son took it for being more autistic than he already is.
2 weeks ago, starting the third week yesterday, we began to have different routines at home regarding the responsibilities that we must have as a family and society. I have already placed this in my previous posts, but there is always a new reader who does not know the subject.
César has had many mood swings and has had very rude responses, he usually did not have that kind of reaction, they were more tantrums and blockages due to changes in activities that could take place during the day. Yesterday I went into a mother-son crisis.
Many people who have autistic children, I don't know how they manage at home, but I am a single mother and I do everything I can so that my son is physically and mentally well, yesterday when I took him to karate he had behavioral crises again, and as many know, for children with conditions, spanking or beatings on time DO NOT SERVE, that does not mean that they are not disciplined.
Mi hijo, para que mejore sus actitudes, no hace falta llegar a la violencia, al contrario, se pone peor, créeme cuando te digo que lo he intentado y nada, no mejora, más bien pasa lo contrario. Se bloquea más. Hace lo que se espera, pero no lo analiza ni sabe qué hizo mal y por qué. No siempre se tiene paciencia para tratarlo con paciencia, yo tengo límites.
Hoy lo dejé en el colegio y no sé con qué me encontraré al buscarlo, él puede llegar contento pero hay algo que lo hace molestar o no le cuadra y comienza a volverse agresivo, aunque ya esa parte la habíamos superado, volvió a ponerse agresivo y volvió a tener malas actitudes.
My son, for his attitudes to improve, it is not necessary to resort to violence, on the contrary, it gets worse, believe me when I tell you that I have tried and nothing, it does not improve, rather the opposite happens. He crashes more. He does what is expected, but he doesn't analyze it or know what he did wrong and why. You don't always have the patience to treat it with patience, I have limits.
Today I left him at school and I don't know what I'll find when looking for him, he may be happy but there is something that makes him bother him or doesn't fit him and he begins to become aggressive, although we had already overcome that part, he became aggressive again and He had bad attitudes again.
¿Cómo puede ser que después de meses de trabajo, todo se venga abajo tan rápido?¿Será la falta de terapias?¿Será que yo como mamá hice algo que no debía?¿Qué le faltará si yo le doy lo que está en mis manos darle?
- How can it be that after months of work, everything falls apart so quickly?
- Could it be the lack of therapies?
- Could it be that I as a mother did something I shouldn't?
- What will he lack if I give him what is in my power to give him?
No es fácil tener un niño con autismo en casa de primer nivel, no quiero pensar en uno con más grados de autismo o con otra condición que tenga más nivel de atención. No quiero decir que no pueda, solo que hay momentos donde tocamos fondo para poder volver a comenzar. Me parece que los meses de inactividad que tuvimos, no totalmente inactivos, porque él asistía a sus actividades, solo que nos paralizamos un poco de cómo veníamos caminando, las actividades eran más activas, teníamos más cosas que hacer y en ese momento por salud nos quedamos en casa más de lo que hubiésemos querido.
Es momento de llevarlo al psicólogo y la cita es para luego de semana santa, no me preocupo que estoy segura que si va esta semana, no quiere decir que va a mejorar de un momento a otro, pero así él habla con su doctora y saca eso que lleva dentro que lo está molestando. Ojalá la doctora lo guíe y lleve de nuevo al objetivo que estamos buscando, sé que así va a ser.
Estos días no me siento con ganas de que me juzguen, ni que me digan que lo estoy haciendo mal, solo quiero un abrazo y saber que cuento con personas que me apoyan. No todos reaccionamos igual, no siempre tenemos la fortaleza, porque por más pequeña que sea la gota que cae en el vaso, puede causar un tsunami.
It is not easy to have a child with autism in a first level home, I do not want to think of one with more degrees of autism or with another condition that has a higher level of attention. I don't want to say that he can't, just that there are times when we hit rock bottom so we can start over. It seems to me that the months of inactivity that we had, not totally inactive, because he attended his activities, only that we were paralyzed a little from how we had been walking, the activities were more active, we had more things to do and at that moment for health reasons we We stayed at home more than we would have liked.
It is time to take him to the psychologist and the appointment is for after Easter, I am not worried that I am sure that if he goes this week, it does not mean that he will improve from one moment to another, but that way he talks to his doctor and gets what he has inside that is bothering him. Hopefully the doctor will guide him and lead him back to the goal we are looking for, I know it will be so.
These days I don't feel like being judged, or told that I'm doing it wrong, I just want a hug and know that I have people who support me. Not all of us react the same, we do not always have the strength, because no matter how small the drop that falls into the glass, it can cause a tsunami.
Con respecto al castigo del celular, mejoró ciertas actitudes, pero sigue teniendo berrinches y malas respuestas, si lo corriges mucho se bloquea y no le da la gana hacer las actividades que se le piden. En el karate tiene que aprenderse un kata, unas actividades para su cambio de grado y cuando se le corrige mucho, se bloquea y deja de hacer la actividad. En el colegio no quiere hacer las tareas y se pone a jugar con sus amigos con violencia y puede causarle un mal golpe que quiero evitar, igual con sus amigos de la casa, les dice que sus juegos son aburridos e incluso puede ser muy grosero con sus desprecios. No son malas palabras, un ejemplo sería: “Esos juegos son aburridos, me aburres y me voy a mi casa”, cuando se comporta así, los niños luego de eso, no quieren jugar con él, él se molesta y pude golpearlos, aunque esos niños ya lo conocen y lo que hacen es irme a decir lo qué César está haciendo.
Cuando lo lleve al psicólogo, les contaré la experiencia y espero que mejore, no quisiera que te sintieras identificado con mi post, espero que te sirva de aprendizaje y tengas en cuenta que no todo es fácil tener un niño con autismo.
Me despido por hoy.
Regarding the punishment of the cell phone, he improved certain attitudes, but he continues to have tantrums and bad responses, if you correct him a lot he gets blocked and does not feel like doing the activities that are asked of him. In karate he has to learn a kata, some activities to change his grade and when he is corrected a lot, he gets blocked and stops doing the activity. At school he doesn't want to do his homework and he starts playing violently with his friends and it can cause him a bad blow that I want to avoid, the same with his friends at home, he tells them that their games are boring and he can even be very rude with their contempt. They are not bad words, an example would be: "Those games are boring, you bore me and I'm going home", when he behaves like that, the children after that, do not want to play with him, he gets upset and I could hit them, although Those children already know him and what they do is go tell me what César is doing.
When I take him to the psychologist, I will tell you about the experience and I hope it improves, I do not want you to feel identified with my post, I hope it will serve as a learning experience for you and keep in mind that not everything is easy to have a child with autism.
I say goodbye for today.
