I'm told there are no treatments. It is a genetic disorder, so any "treatments" would be palliative.
It manifests with different folks in different ways. And I don't know that I have the condition, I can't get anyone to test me.
I suspect I have it, because I've had a lifelong tendency to bruise very easily, I've always had extremely loose joints (we used to say I was 'double jointed') and extremely elastic skin.
Now that I'm older, my spine is more or less collapsing, I have worsening scoliosis, but also kyphosis (widows hump/osteoporosis) and lordosis, and lastly, in 2016 I began to manifest extreme leg and foot cramps, but only after I lie down.
So I take magnesium for the cramps, Tramadol (pain) and Baclofen (muscle spasms) and that's about it.
This is what my neck scan looks like or did in like 2014 (we almost did a fusion, lord god I'm glad we didn't)
RE: The Lassecash Rebrand: An Underappreciated Tribes