To my friends and to those that are concerned and to the ones that are following my peculiar and often uninteresting journey with my medical condition of my bone health and with my dialysis, you all already knew that I was just having a problem with my dialysis treatments because I often get these blood pressure crashes which I am really having a problem in solving.
It is also apparent that I am having an excess water in my body which is leading to my I should say "Full discomfort" because I feel like a balloon filled with water if you can just imagine it or you are empathetic to my disposition because it is just hard for me to have a water burden considering my current physical condition as I could not even carry myself while standing-up.
That was the reason I am always asking my nurses to set my "Dry Weight" down but whenever they listened to me and did what I want my BP would crash even in the times that I just let them hold fully the reigns of my treatment. So they got apprehensive already of doing what I tell them to do. But because I believe that I do have a great reason about my request which was I am really feeling shit about these excessive fluids for a long time in my body that causes me to have a breathing problem for more than two years now if I can still remember I just have to take action otherwise nothing will change for the better for me.
That is just what I did so prior for my dialysis I was weighted and the counter had read that I was 56.2 Kg (On a Wheelchair) then I deducted the fluids that I wanted to be taken out from my body by the dialysis machine which is 3.5 Kg and then added the weight of the food and drink that I would intake while I am hooked-up .700mL or about 3/4 Kg and then added the weight of the other energy drink in a small bottle which is .15Kg or 150mL and the result would come up as 53.55 Kg.
Now the head nurse had told me that if I would crash my BP they would not do any mitigating procedures anymore like raising my feet and adding saline solution to let my treatment continue somewhat. They will just terminate my treatment and not continue it anymore in a very threatening way. I was just calm as I could not really raise my voice lest I will provoke her mean attitude towards me.
I said "Ok" and then after a while they told me to just sign a waiver proving that if anything happens to me they will not hold accountable. Then they approached my mother telling her to sign in my stead, then my mother approached me that what my nurses want which is just to set the blood pump to 200ml/minute and the fluid withdraw to 2.5 kilos only are substantial enough. Of course my mother doesn't understand what I wanted to happen or anything.
At that point I just raised my voice for her to take the waiver so that I could sign already because things are getting noisy already with such a simple task to do. So they gave me a blank paper (maybe to give me some hard time in writing) and let me figure out for myself about the waiver. I wrote a "Waiver" on top and wrote about the nurses and the hospital are not responsible and so and so plus how much fluids to be taken out from me and the expected post-dialysis weight in which the result was only 50mL in difference after my treatment session.
After my mother and I have signed to that waiver I also wrote thanks to my nurses for giving me a hard time in doing so because "that is what I wanted" they said, so what I wanted was done. A few moments later my mother brought me my food, I ate it all with the extra rice and two extra gravies and drank my energy drink which contains 100mg of caffeine total from two small sachets of those energy drink powder.
Then mother refilled it with an energy drink similar to "Red Bull™" which contains maybe 64 mg of Caffeine. I didn't drink it yet and waited one hour more from my 4-hour dialysis treatment to see if it would come down after the second BP reading then that is my queue to drink that energy drink plus the "Caffeine Pill" that contains 200 mg of caffeine.
It just worked because my BP got stabilized and didn't even touch the 110 Systolic. I successfully finished my Dialysis treatment considering I have achieved a dry weight of around 36.5Kg or 53.6 Kg sitting in a wheelchair. The result was quite dramatic for my body, I felt light with more energy maybe because of the energy drink because I am a kind of jittery right now because a 250mL/minute blood pump isn't really that fast because in the west they are doing even 450mL/minute unlike here in my country where sometimes they just set it to only 150mL per minute.
My nurses are probably scratching their heads why my BP didn't crash considering that my dry weight got adjusted down. I might be the topic of their conversation today or tomorrow in a belittling kind of way about the drama todat which I could not tell in much of detail already.
Anyway Caffeine was the solution about my long-standing BP issue and that is the saving grace that I am waiting for to finally let myself at least survive dialysis without an hard fuss but of course I regret using Caffeine but I have no choice because I needed to get well and my nurses are not working on it. But there is a time out of the blue even only after one hour I would feel lightheaded already which why i plan to take it prior for my dialysis just to prevent that from happening and would save one tablet if needed be in the remainder of the treatment.
I so I am happy and felt much of an ease after for so many months of enduring my bloated issue and would intend to continue this saga of my struggles until I achieve a far greater level of wellness if God-wills it for me and I would like others to learn from what I have down because it would mean awareness for others which is similar to my situation. To God be the glory forever, Amen.