Bad night, bad day, lots of bad pains, Fibromylagia doesn't care if you have plans or want to move. It does decide whether you are able to move or not. I have no say on it. Fibromylagia is pain and lots of it.
Before I was assessed for this I didn't have a clue what was going on
I've had pain since 14 when I hurt my knee jumping over a wall landing on my knee. After 9 operations and being told I can't have anymore as have nerve damage I thought I could live with this pain. I never for one minute thought all these new pains I was feeling along my Collarbone, Shoulders, Temples, Knees, Hips and Back were all connected. All these pains alongside my Chronic Pain, Osteoarthritis and Chronic Fatique were leaving me feeling useless.
I hate letting anyone down, before my pains got to bad I would help anyone now I have to say Sorry No all the time I feel awful. People have stopped asking me to do things friends have walked away as me saying NO all the time is me not wanting to be with them. They didn't understand what I'm going through. You have to consider whether they have stairs, where the toilets are, room to stretch my leg etc.
My hubby went with me to the Rheumatologist to be assessed, he didn't really understand Fibromylagia and I needed to do more research. We talked for a while, he asked me loads of questions then examined my body, he also did a blood test that found I was severly low in Vitamin D. After my assesmenyt he told me about Fibromylagia. He gave me leaflets to read and if I needed anymore help to get in contact with him. I spent ages learning about it. I thought to myself it really can't stop me from moving if I fight it and push myself then a few days later I woke up stuck onmy back unable to move, all I could feel was pain.
I had to stay in bed all day, hubby kept popping up to check on me, most of the time I was asleep, Chronic Fatique is another thing you can't fight. You just have to go with it, keep yourself as comfortable as possible then once you are able to move take it very slowly and only do what your body allows you to do.
Thankfully I have a very understanding husband, he still has his days when he tries to push me to hard. I have depression too and usually having one brings on the other as you start feeling useless. I can't do much around the house or go out, my life is pretty dull and boring as in housebound, I need a car but hubby takes it to work. I have to wait until the morning to decide whether I can go out or the pains are to bad.
Life is pretty slow for me now, where when I was younger there was no stopping me, I wouldn't stay home. I live within four walls that at times become my prison. I've tried so many things going thru well help but nothing does. Its who I am And I have to be happy with what I still have, my family.
Thank you for visiting. ππ
