A brief look at my Essential Tremor in action for Rare Disease Day, February 28 2019

Just a quick post to boost the signal - next month (March) is Essential Tremor Awareness Month, but today is #RareDiseaseDay.

While I haven't blogged about my condition recently, I live with it every day. So does my family. The severity of my tremor ebbs & flows, but the support, particularly from my hubby, is as steady as a rock.

This video was taken by him last May, a short time before I got my diagnosis. It's actually the second take, because he stopped recording the first time when I started talking. Silly man thought I was talking to him so he stopped recording the first time - like I could make it through the whole video with saying a word! You'd think, after 32 years together, he'd know better!

http://ow.ly/PQih30nSlCJ

I can no longer drive, and my tremor has progressed to the point that when it's triggered, my diaphragm spasms so much that I can't speak, only stutter. However, I'm incredibly lucky that I'm able to do things (a story for another post) to help control/calm things down when I really start to rock 'n roll.

On the plus side, though - I've dropped a bit of weight since then (most of it was gained because of medication I was on). You'd think that, being such a mover & shaker, that I'd be a size 2 by now!

For more information -

https://rarediseases.org/rare-diseases/essential-tremor/

https://rarediseases.org/rare-disease-day/

#share2steem #powerhousecreatives #NORD #EssentialTremor @RareDiseases #ShowYourStripes #ShowYourRare #EssentialTremorFoundation #Tremor2019 #RareDiseaseDay2019

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