Its been more than a week since I started blogging here on Steemit. This kind of social media is very rare where you can earn from every blog, comment and replies . By just being yourself you can actually earn by the doing the things you usually been doing in other forms of social media. Amazing.
For a week that was all of my post earn 20SBD. I am still not aware of how to manage my Steemit accounts and earnings and I guess this 20SBD will be of a great help for my medical needs. More to that I am overwhelmed by responses of other Steemians regarding my post. I am truly honored by your words. Thank you for all your compliments and support. Thank you 
I am also happy to meet 
I will be very honest. As I am witnessing his post, I am also trying my luck here. Having a rare confusing debilitating expensive kind of disease is really a great challenge. Being a person with disability is really not that easy most specially in providing your everyday needs ( on top of my medical needs ). I tried applying for a job but I cant get hired. My online mlm is still not that stable and it is in rough times a of now. Income really dropped almost at the rock bottom. But as I said in my previous post all of this serves for a great purpose. There is a great reason why all of this is happening. I just need to help myself so well. Yesterday I traveled for more than 3 hours from our place Antipolo towards the capital of our country, Manila. I went to Philippine General Hospital (PGH) for monthly check up routine.
This is the only nearest hospital which can cater my medical condition. For so many years of pain regarding my disease I was hopping fROm hospital to hospital on whICH can address my RARE conditon. OF course I started from the nearest one until my fate brought me to PGH.
Going there, I have to commute and go along with flow of vehicle traffic and the multitude of people most of the time all by myself more than twice a month so my case will be monitored and controlled. I cant afford to be bed ridden anymore so I rather do this routine: more than 3 hours of ride, three vehicles ( jeepney , train then jeepney again) , climb countless stairs carrying my heavy back pack with my meals and drinks for the entire day of check up or labtests, then travelling back home again in the midst of unpredictable weather and bumping to fellow commuters. been doing this for many years. As time pass I find it challenging and also made a way to find joy doing it. It is because I must. It a perspective to see it in a bright side.
Honestly this is much better than being in bed and let your family be taking care of you ..them not being able to live their own lives because they spend their precious hours taking care of you. That really breaks my heart. When a family member is sick the other family member is much affected. I dont want to that happen again.So I must face all of these. I usually go alone for I dont want to bother anyone life most specially their everyday work. They do have their own lives too to enjoy.
Feeling sad right now. As I saw my doctor yesterday I was complaining about my bone pains. my spine my hips neck and hands. I was asking her to bring back my calcium supplement to the roster of my medicines but she refused. She said my kidneys may longer handle the calcifications and stones if I will take calcium again. Sooner it may fail and lead to dialysis which is much more expensive. But I have osteoporosis too and taking calcium relieves me of my pains. In the midst of this dilemma she also said that I cant take pain killers for it will aggravate the case of my kidneys. So I have no choice but to bare the pain and learn how to manage it.
After the check up I went to a local drugstore to purchase my medicine. With only 2000 pesos in my pocket, I was only able to purchase medicines good for 10 days only. So I need to make a way now on how to manage my medicines for the rest of the month and so on or else I will be back in bed and there I will be unproductive again.
I was in the verge of having self pity again inside the drugstore but I need to come up with my senses. Self pity wont help for I was long been imprisoned by it before. the results is really destructive.
Since last night I was really thinking If i would really be posting about my personal situation. Should I be blogging of my conditon... my personal life. I am here to give hope and inspire other people. It could be a contrary to my endeavor here on Steemit. Thinking aside and honestly thinking of cryptopie case...why not give it a try.
I consider not being able to fund my medicines. That would mean I wont be able to do blogging in the future. I wont be able also to log in on my account for I dont have a penny to buy a wifi connection.
I know this is not right or this is not the right platform to do this. But I would like to try to make a plea. My dearest Steemians your upvote can change a life. Your upvote can improve some on a rare medical condition. Your upvote means a lot. But whatever this post may lead to I will whole heartedly accept it.
Thank you for reading. God Bless you :) :) :)
Sincerely,
Rafael :) :) :)