This is Jonathan Pire.
He was born in 2nd of June 2000 in Canadian from Russell, Ontario, a small town near Ottawa.
Pitre was born with a rare genetic mutation called recessive dystrophic epidermolysis bullosa (RDEB), which causes external and internal blistering across the body.
His problems and live gained attention in October 2012 when he was interviewed by the Ottawa Citizen, and he became an ambassador for DEBRA Canada, a charity devoted to the support and awareness of EB.
He had a very hard live.
He could not move any part of his body and his body burned every single second for him.
It was hard to eat, drink, have fun, get a shower or anything else!
But he was full of live!
He had many dreams and aims , even when the doctors told him that he only reach 25 years!
He met differenr famous people and tried to fullfill his dreams!
But....
He dies on 4th of april 2018 , when he was 17 years old!