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It is just unfortunate that for the most part of my stay here on earth is laying down on my bed. I must say that I am not really comfortable while laying down much less to sit around or walk and also to stand.
Now I reckon I have to maybe invest in something that will make me comfortable here on my bed because even rolling on my side now is not as easy as it sound because it is difficult to do it now with my crooked weak backbone.
My bed is just composed of a single foam that I bought years ago. Most of it now is compressed to lying on it feels like I am lying on the floor. But nothing is more comfortable than laying on my bed now, it is the most comfortable spot in the house.
So even though it is so hot here on my bed especially during the hot and humid months I still prefer to sit here rather than to sit anywhere in this house.
Now I just decided to look for a good foam, maybe a memory foam or a combination of a foam and memory foam so that I can almost lay down with not much pressure on my bones particularly to my crooked and painful backbone.
I am just thankful that Cinacalcet somewhat alleviated a bit that lingering pain that I was suffering from a couple of years ago. I can't imagine myself now having not to take it back then and it just improved my life a bit now.
But taking Cinacalcet really had trashed my appetite and I am so frustrated and sad about it. But I still have to take it so that the terrible pains would not come back. My body pains back then was so much a torture that even clenching my fist had gotten painful too. So my prayer is for my body pains to completely be gone in the future so that I will not worry anymore about my back to snap one day and cause me paralysis.
I have so much to think about my body which is why sometimes I feel down and sad about my condition. I just have to do something about it and hope that the mercy of God would trickle still on my as well as the understanding of my friends here from this platform about my condition so that I can at least get some more prayers from all of you.
My bone condition needs a miracle but I am still hopeful that someday I will feel a much greater relief when I finally achieve my medical goals and make my life free from pain, worries, and liveable. May God help me.