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Dad Against Duchenne
@d-a-d
60
In 2022 my son was diagnosed with Duchenne muscular dystrophy and now, person by person, I'm raising awareness about it.
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Adelaide
Created
2023-09-20 06:25
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d-a-d
Reflections
2024-02-27 06:12
The Eye of the Beholder
... in it's most used context, funny does tend to sit with the people watching, but now I wonder where the truth lies.
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d-a-d
FreeCompliments
2024-01-26 21:47
The Invisibility from Disability
In a similar philosophy to ownership, perhaps being aware is nine-tenths of the issue. Is awareness all that's needed?
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d-a-d
FreeCompliments
2024-01-14 05:02
Good Grief - Learning About The Stages of Grief
Following from my introductory post about grief and how I’ve experienced it over the past couple of years now, I’d like to have a quick look at the stages of grief. In my experience, I didn’t track how
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d-a-d
FreeCompliments
2023-12-31 22:49
Good Grief - An Introduction
I've read about grief and have always counted my blessings at having never experienced it in its truest form. I can't even really recall knowing anyone who has ever experienced it in its truest form. I
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d-a-d
FreeCompliments
2023-12-18 23:39
Life's Crucible
She's learning heartache and sadness, but she's also learning empathy and how to genuinely care.
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d-a-d
FreeCompliments
2023-11-27 23:06
10,372 - Part Three
This is the third post in this series, please read the first two posts before continuing. You can find Part One here: 10,372 - Part One, and Part Two here: 10,372 - Part Two. We departed the doctor's office
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d-a-d
FreeCompliments
2023-11-19 02:37
10, 372 - Part Two
This is the second post in this series, please read the first post before continuing. You can find it here: 10,372 - Part One. Our frustrations continued to mount at not being able to nail down what was
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d-a-d
FreeCompliments
2023-11-16 01:03
10,372 - Part One
I wrote a post a short time ago titled What is DMD in which I explained, as best I could, a little about the DMD diagnosis process and what it's like living with DMD. In that post, I did inject a little
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d-a-d
Education
2023-11-15 02:14
What is DMD?
This may not be a traditional education post, however, it is educational in nature, so I hope it's okay to put it in this community. In fact, I hope that this post will educate anyone who reads it on a
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d-a-d
introduceyourself
2023-09-23 00:22
A Dad Will Do Anything - My Introduction
Hi everyone, my name is Steve, but here I'll refer to myself as d-a-d, which is an acronym for Dad Against Duchenne. Eighteen months ago my son was diagnosed with a rare neuromuscular condition called
$ 2.757
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