Today's hospital appointment lasted us in total 5 hours in the morning! Phew! Finally, we successfully met up with the surgical team. It was a usual follow-up but had been postponed since January due to

내 인생 최고의 돈까스! 명란+돈까스+할라피뇨 소스+ 들기름에 무친 숙주 최고의 조합이당 🤭💦 세상 사람들 모두가 맛을 봤으면 좋겠당 🥳

Life of a tubie child is not easy. You just don't know what is going on internally. Some said it is the complication of fundoplication surgery. Some said it is reflux. We just can't be too sure. The most

Doctor said he is so small and definitely "poor weight gain". He will be 4 years old and 2 weeks time and he weighs 10.55kg with height 91.4cm. Mummy and daddy have tried our best yet there is

It's heart-wrenching to see son's condition with chest infection. Needing nebuliser, suction & on the strongest antibiotic. Hopefully he can pull through this ordeal, although I'm worried due to him

After few days of bouts of fever and cough, we headed off to ER to have our son checked. Due to him a CDH-er, we could not afford any risk. So the main culprit is bacterial infection which caused tonsilitis.

After feeling very uncomfortable for past 5 days, almost 24 hours lying down and of course all feed were done via stomach-tube, at last he gradually felt better. And starts to eat too. Indeed is THE FIGHT

We were told not to record video in the ICU. But we were unsure of the future. So the moment Jansen opened his eyes, we could not help but to video....secretly... ;) ▶️ DTube ▶️ IPFS

After his diaphragmatic hernia's surgery, he continued to rely on different types of breathing machine and at 2-week-old, he started being fed mummy's milk via NG-tube (naso-gastric tube meaning nose to

This was the 1st surgery performed on Jansen that left me crying my eyes out and there was no faith and no hope found in me. It was the moment I gotto prepare myself to lose him. Merely due to the fact

We started tube-weaning Jansen since 1st December this year and oh my the journey is tougher than I thought it is. (If you want to know more about what happened to Jansen, my 2nd son, I posted about it

Today is my husband's birthday, but instead of him receiving present, he received a parcel today which is'present' sponsored by Jansen's grandma for Jansen! Thank you to darlingi! Thank you to Jansen's

This video is to show how I take out the old Mickey feeding button and insert a new one into Jansen's stoma (stomach hole). ▶️ DTube ▶️ IPFS

During tube-feeding yesterday morning, we heard a gentle "thud" then stared in disbelief. "Oh my, Jansen's feeding button has dropped out!!!" "Where? Where? No more button at my

Usually the easiest way to feed my son via g-tube is formula milk specially designed for tubie. It is always being advertised that the formula contains everything that your child needs for balanced growth.

Many don't get to experience eating and sleeping at the same time. But my son has this opportunity as he is tube-fed and got to be fed overnight due to insufficient calories throughout the day. He has

So back in July 2014, at 30 weeks of pregnancy of my 2nd son Jansen, my husband and I were told that our son has right-sided CDH. Just three alphabets "CDH", congenital diaphragmatic hernia,